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Adult Hodgkin's Lymphoma: Resources

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This is where this site started - a list of Hodgkin's lymphoma resources. Comprehensive information on Hodgkin's is spread throughout the internet. While this site lists information sources on most pages, additional sources are listed here for your reference.
 
A very good source of information  is the US government National Cancer Institute (NCI). Their Cancer.gov service is regularly updated. 
The US National Library of Medicine also has some newer, more detailed information on specific topics.
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US Cancer.Gov (Cancernet) Information

Cancernet has recently been totally redesigned (again)!  It is recommended to start with the patient information. As you become more familiar with the condition, you may want to view the physician information also.

NCI can also be contacted via telephone at 1-800-4-CANCER. See their web site for other contact information.


Books

General Sites

Several medical sites on the internet have general, concise information

Information Sites

New Patient Information

Pediatric (Childhood) Hodgkin's

Hodgkin's in the Elderly

  • The Study for Hodgkin's in the Elderly (SHIELD) Lymphoma Project in the UK aims to register elderly (>60) patients with Hodgkin's disease and collect simple data to understand the range of current therapies and outcomes.  (new)

HIV and Hodgkin's Disease

Causes of Hodgkin's

  • Agent Orange, the chemical used in the Vietnam War, has been linked to Hodgkin's
    • AOWAC is an organization dedicated to providing information on Agent Orange and links with disease including lymphoma. (updated link)
    • One paper that discusses the Non-Hodgkin's connection.

Late Effects (Post Treatment)

  • The new section After Lymphoma goes into detail on this subject.
  • Hodgkin's Disease, Peter M. Mauch (Editor), James O. Armitage (Editor), Volker Diehl (Editor), June 1999.
    • Section VII: Late Effects
  • Childhood cancer survivors face higher risk of breast cancer - Girls treated for childhood cancer with chest radiation are 20 times more likely to develop breast cancer later in life than other women, and run an extremely high risk of getting it by their early 20's, a study suggests.
  • Secondary malignancies after treatment for laparotomy staged IA-IIIB Hodgkin's Disease (abstract)

Technical Discussions

Other Sources of Information

Also see the organizations page for organizations that provide cancer information and support.


Further Reading on Adult Hodgkin's Lymphoma:

For Information on Childhood Hodgkin's Lymphoma:

The Main Page - your guide to support and more:


This page is a work in progress. The author is not in the medical field and does not warrant the correctness of the material on this page or the sites linked - please take online information and consult with your own medical team to make informed decisions.

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Updated November 13, 2005